Mommy's Juice!: The Not So Merry Christmas   

Friday, May 4, 2012

The Not So Merry Christmas


I have neglected to finish the story of Trey's birth.  Well actually, I got to the birth part, but I failed to continue the story of his time in the hospital, which was a very difficult time and one that I want to share with other mother's who have just heard the word "gastroschisis" for the first time.  For the full story please click here.  

As I mentioned in my last post, Trey's birth went smoothly and his operation apparently was perfect!  He was in the critical NICU unit.  After I was forced to take a little time to rest after the C-Section I was allowed to go down and see him, albeit in a wheelchair that I was not happy at all to be in.

When we got to his room they had him in the incubator.  He was hooked up to a number of machines and I honestly didn't know what was doing what.  His belly was covered where the surgery had taken place.  I couldn't hold him yet, but I could see him, I could talk to him, I could let him know how very, very, very proud of him I was, and how much I loved him and couldn't wait to touch his tiny hand.

Trey was small at birth, 5.7 pounds, and would fall under 5 pounds during his hospital stay.  But when I noticed the other babies in the room, he appeared giant.  Needless to say, the majority of babies in the NICU are premature, and Trey outweighed all of them by at least 3 pounds.  If you have never laid eyes on a 1 pound baby feel blessed, it is possibly the saddest thing I've ever seen.

I ended up staying in the hospital with my husband for four nights. Refusing to listen to any of the doctor's telling me to "take it easy" since I too had just had surgery, I pushed myself a little too hard and ended up fainting on a few occasions.  But frankly, I didn't give a shit about myself, I wanted to be up and ready for whatever was about to come my way.

They had told me to expect Trey to stay in the hospital for 6-10 weeks, until they were certain he was able to eat on his own.  I was pumping milk which we were giving to him through a syringe literally 1 ml at a time.  Once he was able to go a few hours on the 1 ml without any side effects they would move it up.  I can't even begin to tell you what a long and impossibly frustrating process this was.  But he was a trooper and doing fantastic.

I checked-out on Christmas Eve, four days after Trey was born.  By then we were able to hold him and feed him his syringe.  He was doing so well that they were able to move him from the critical NICU to the Graduate NICU and out of the incubator within three days. Very, very, rare according to the doctor's.

As sad as I was to have to leave, it was important to us that we spend Christmas morning with our 2-year old, who was at our home three and a half hours away.  Leaving the hospital that day, with my newborn son still inside their doors, was beyond difficult.  Though I was so happy with his progress, it just didn't seem right to be leaving empty handed.

When we arrived home Jackson was beside himself happy to see us, as we were him.  On Christmas morning before opening gifts I called Trey's room in NICU and was informed he had taken a turn for the worst.  He had spit up his milk the day prior and was going back to the feeding tube.  He was also jaundiced and had gone back in the incubator under a light.

We had been warned that with gastroschisis there was a lot of back and forth.  Just when things looked good the baby could have a negative reaction.  But after things going so well those first days I guess I had just assumed the worst was behind us.  I spent the entire Christmas morning doing everything I could to fight back the tears for my 2-year old.  I've mentioned "hardest times of my life" a few times throughout this story, that day, the guilt I felt at not being at the hospital, of being torn between my children, was most definitely one of the hardest moments of my life.  I'll never forget that Christmas. Nor will I forget this last Christmas, opening presents with my two completely healthy boys, happier than ever.

More to come....


    



10 comments:

  1. Oh mama! I definitely know how you feel. My boys were born 12 weeks early. Thankfully not one of the 1 pounders, but still tiny at 2 lbs. They were in for 71 days. What I can tell you is that it does get easier as time goes on. Much love and prayers for strength and healing.

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  2. This is so heartbreaking to read! Poppet had a real chance to have been stillborn, and everytime I hear something like this and hear of Mums leaving the hospital without their babies (be it temporarily or permanently), it just brings me right back to that moment! I can't imagine how hard this would have been for you!

    Warmest regards,
    Joy
    http://www.PardonMyPoppet.com

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  3. I can't even imagine going through something like this.

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  4. You used the same term our family has used over the years... "like a trooper" My son was in the NICU for 1 week... it was more transitional for him. He needed a little oxygen and they had to run tests to see why after the cord was cut he had an apgar score of only 1... he went completely lifeless. Those are difficult moments... I loved how you ended this piece with a "happy ending" !

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  5. Aloha,

    I stopped by to say thanks for joining the ALOHA Friday HOP...

    Now it seems almost insignificant compared to the living you have done. I am so glad your boys are healthy and celebrating Christmas together. Thank you for sharing this part of your story.

    We're riding the wave of life at localsugarhawaii.com and I'd love it if incredible you would join us for the ride.

    xoxo,
    Nicole
    localsugarhawaii.com

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  6. What an incredibly difficult beginning for you and your new baby! I can't imagine how hard that would have been to leave him in the hospital.

    And I am so glad you skipped forward and added in the happy ending:)

    Thanks for sharing your story,
    Kristina

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  7. Oh my word, I couldnt imagine going through anything like this. When I had my twins they were born 4 weeks early, and I had to leave one at the hospital for 3 days, I cried everyday until I was able to bring him home. Thanks for sharing with us.

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  8. Love the blog!!! Saw you on the Hop. Please follow me back!!!
    http://www.simplyheavenlyfood.com/

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  9. Hey I found you via the aloha hop and am your newest follower!! Maybe we can follow each other? Also Today is the last day to enter my modcloth giveaway!! Come check it out!

    THanks so much:)
    Emily

    http://emilymmeyers.blogspot.com/2012/05/giveaway-time-again.html

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  10. I also found you on the Aloha Blog Hop. I'd love a follow back at http://sassyshopperreviews.blogspot.com/ Your story was really touching. I wish you all the best and extra strength on the harder days.

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